“You look and sound great!” people say, “I’d never know you were sick!” I wish I had some visible sign of illness or pain so people would be able to empathize. I think I’ll start wearing red eyeliner – that always makes you look terrible.
I used to be pretty okay for the three days before my next shot. Those are the three days I am working. Now I notice that by 4:00 in the afternoon, when I take my second dose of pills, that I slump to complete exhaustion and struggle to behave nicely towards others. I snap at people, saying exactly whats on my mind, which is never a good idea. I am cranky and irritable.
Your blog is great ! I like your posts I like the pictures that illustrate and what you say is so true !
Like you, during treatment (24wks) I was particularly irritated by people, even relatives, saying ‘You look and sound great’ when I was loosing my blood, my skin and my flesh. I could not know if it was to help me to keep good mental, or protect themselves because they were embarassed to see me so low, or just because they did not care .
Ozias
I’m glad it was helpful.